What is International Epilepsy Day?
International Epilepsy Day started in 2015 and was organised by the International Bureau for Epilepsy (IBE) and the International League Against Epilepsy (ILAE), the day provides a platform for people with epilepsy to share their experiences and stories with a global audience. The day also calls for all people to advocate for appropriate legislation that will guarantee human rights of people with epilepsy and encourages people with epilepsy to live to their fullest potential. The Epilepsy Foundation is a full member of IBE. Despite being one of the world's oldest known medical conditions, public fear and misunderstanding about epilepsy persist, making many people reluctant to talk about it. That reluctance leads to lives lived in the shadows, lack of understanding about individual risk, discrimination in workplaces and communities, and a lack of funding for new therapies research. People with epilepsy die prematurely at a higher rate compared to the general population. The most common cause of death from epilepsy is sudden unexpected death in epilepsy, known as SUDEP. For many people living with epilepsy, the misconceptions and discrimination can be more difficult to overcome than the seizures themselves.
International Epilepsy Day seeks to raise awareness and educate the general public on the facts about epilepsy and the urgent need for improved treatment, better care, and greater investment in research.
